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Become a FundraiserEvelyn has had ALS since being diagnosed in February 2003 at the Cleveland Clinic. She worked for the Jewish Federation in Boca Raton Florida. She relocated to Hemet California in June 2008 after becoming fully disabled to get better care.
Evelyn has slow acting ALS. Which started as hand tremors in 2002 and slowly progressed to her arms. In 2008 the symptoms progressed to her legs which led to being in a power chair.
After relocating in Hemet California, she registered with Loma Linda University ALS clinic with Doctor Nist. Six months later, she registered with the MDA clinic with Doctor Mozaffar in Garden City California. Currently, Evelyn lives with her parents in Hemet California.
Her mother has made several renovations to the house to make it more handicapped accessible including a pool lift, ramps, and roll in shower installed by her cousin Dean Prenger proprietor of Sun City Tile.
I am very fortunate to have such wonderful friends and family. I worked in Florida at the Jewish Federation of South Palm Beach County with a group of people who were like family. They helped me every day with any obstacles that became difficult for me. I enjoyed working, and it was very difficult for me to leave work. My company was very helpful by setting up my computer to work from home, but I mostly came into work, because I enjoyed working with everyone and the volunteers were very helpful. I moved to California to be with my parents. I am enjoying my relatives and family in California. Life is like a roller coaster, it has its ups and downs, but you have to stay positive and be happy for what you have.
ALS is a terrible disease that robs you of your muscles, one by one. No matter how physically fit you are or how healthy your diet is, there is no rhyme or reason of who gets this disease. I believe it is caused by toxins in the environment. We are all fighting for a cure, and we need everyone's support to help research put an end to this disease.
May 3, 2012 I got a tracheotomy and peg tube. I spent 7 weeks in the hospital and then a rehab facility. i am glad to get rid of the bipap mask. The peg tube is a blessing. als is a journey and i am feeling great. i use my Dynavox computer to talk and chat online with my friends.
I am very blessed to have such wonderful friends and family who are saying prayers for me. Thank you for all of your comments and positive support.
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